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Caution, Caution

Five weeks later, after a week in the psychiatric unit and several ECT treatments and new medication, I have begun to feel better. What exactly does that mean? Well, for one thing, I am thinking more clearly than I have in about 6 months. Thoughts are clear and follow a pattern and for the most part are not negative toward myself. I can also be and feel more involved in conversations and feel present in social situations as well as at work. Time will go by and instead of me feeling misery with each passing second, I surprise myself when hours have gone by without my tracking them. My mood is definitely better which was sparked by the clearer thoughts. My mood is more reality based and not as negative toward myself. I can be “with” my husband and daughter and really be there. I know they both feel the difference, just as I do.

With this renewed sense of clarity though comes with it a review of the past 6 months and realizing and recognizing how ill I was. Thoughts occur to me that are deeply painful and there are moments I need to write them down as part of processing them. My therapist says I will need to let them go but since it’s only been a couple of weeks of beginning to feel better, I need more time. I am not ready to let go yet as it is important that I process certain thoughts and occurrences in order to be able to let go and move on. Because I was so ill, it was difficult to understand or even acknowledge my thoughts when I was in it. I knew I was quite ill but at the same time it became my “normal.” As I come out of it, the realization of how confused and painful my thoughts were is overwhelming at times and I need to let myself process, cry and mourn. I do feel I am in a period of mourning–the time that was lost and the reality of what this horrid illness did to me, physically and mentally, represents a huge loss.

It is a lot to absorb and I think it is vital to those around me to understand that just because I have had an upward swing these past 2 weeks, and I do believe that will continue due to this wonderful new medication, I am currently enduring something very deep and existential the likes of which I have not experienced before and if I did, I simply do not remember. There is no magic act where I have been cured and all is wonderful now. I have to find my new normal, just as I have after each of my other episodes of severe depression. This is a true process and I know I am on the right track, I just think it is important for those around me to understand that this process is ongoing. I may not have those ongoing feelings and thoughts of harming myself but I am not cured. They sometimes lurk in the background and luckily I now have more strength and understanding and can talk to my therapist and psychiatrist about them. I am very well aware that I am at risk and luckily I have a husband who is on guard and a therapist and psychiatrist who also are taking stock of what I have been through and where I am at now.

It is a good place to be, certainly a better place than the past 6 months. I have endured treatments that were invasive and, at times, terrifying. Transcranial Magnetic Stimulation (TMS), Ketamine Infusions and Electroconvulsive Therapy (ECT) held their own stress and hope and represents how I have and will continue to jump through those hoops that my therapist, psychiatrist and other doctors at Yale present to me. I am a good patient and I always have been. I listen and I advocate, even at my sickest. It is a true collaboration and I consider myself extremely lucky to be part of this amazing collaborative team; not only that but I am considered an important part of this team. I know many people who do not have this experience and feel on the periphery of their treatment team which, in my mind, is a sin. I know how lucky I am and would not be where I am now if I did not have a respected place within my own team.

I will give myself the time needed to process the many thoughts and memories of the past 6 months that come up. I will talk things through with my therapist in order to understand and course through these memories and thoughts so I can let them go. I know I will need time to get there and I know I have the support of my family and friends as well as my therapist to get me through to the other side. I will always have memories: certain smells and sounds may bring me back to those moments immediately before I was given anesthesia for an ECT treatment. I just need to allow them and talk about it in order to process it if I need to and/or let it go. This is easier said than done right now which is why I will repeat the importance of doing this on my own time. The past 6 months have been pure hell and has affected my family and friends but as my therapist has said to me numerous times, it affected me the most and the worst: I was the one with the severe depression. There is much to process, feel and mourn and I know I will get to that next stage of letting go within my own time frame and with the support of those around me.

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Kveller: After My 5th Psychiatric Hospitalization, I’m Looking for Peace

http://www.kveller.com/after-my-5th-psychiatric-hospitalization-im-looking-for-peace/

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Welcome Home! You’re All Better?

I have been home from the psychiatric hospital for a week now and, at times, I am overwhelmed by very small things. It is a wonderful thing to be discharged from the hospital particularly when there is a good plan in place and one feels safe. That was certainly my experience. To be honest, though, it is not easy. One may think being back in the comfort of one’s home would feel soothing and relaxing but for me, I have not consistently felt that. I certainly sleep better in my bed with my life partner by my side and I certainly like not being checked on every 15 minutes. The stresses that brought me to the hospital are still there although dulled. I am still experiencing weird occurrences of remembering different aspects of being in the hospital as brought on by smells or sounds. I need to be careful when that happens not to allow it to take over my thoughts in those moments as it will not accomplish anything positive.

I am still not feeling great so I still need to monitor my symptoms. That can be difficult at times. There are times when I feel like everyone in the entire world is texting or calling to check on me and it feels too enormous to respond. That then brings on tremendous guilt and its own version of negative self-thoughts. The truth is nothing about this is easy for anyone involved in my life.

My therapist had used the term that I needed “a break” and classified that as me going to the hospital. I told her this week that I could not continue to describe my hospitalization as “a break” as it was not as if I took off a few days to go to Canyon Ranch (I wish!) or took a few days at the beach. In my mind, it was not really about taking a break but rather keeping me safe. That was the bottom line and the reality of my hospitalization. That is the new language now that I will be using. While I may have also needed a break from reality, the intention of going into the hospital was to keep me safe, simple as that. I talked with my husband about this language and he agreed. I am learning a lot right now about how important it is to let others in. It was important to tell my therapist that I did not agree with her language and we were able to talk about it and come up with a solution. Also, just as important, I knew to bring this to my husband’s attention in order for us to be on the same page. Semantics can carry a lot of meaning and it is so important for me to be understood. It is a very empowering feeling.

What would be helpful right now? Certainly hearing from my family and friends is important, I just may not respond if I am not up to it. It is not personal. I need to let others into my world a bit more as I have been unable to do so for months. This is very hard for me as I have not felt others “with” me in that emotional way in several months as my depression has fought against those feelings. Cut me some slack while I find my way. Yes, it is great to be home from the hospital but there is still a lot for me to acclimate to socially, emotionally and rationally. I need to try to give myself a break, too, during this process and for me that is like delving into the unknown. It scares me but I can intellectually see how important it is to my ongoing recovery.

My new medication is holding a lot of hope and during this waiting game of a few more weeks as it kicks in, I have chosen to have a couple of ECT (electroconvulsive therapy) treatments to help me get through. This was not an easy decision to make and although I originally told my doctor in the hospital I would not have more treatments as an outpatient, I came to it on my own once I was home for a few days. I felt empowered and terrified making this decision as there is so much anxiety for me before each treatment. It was helpful though while I was in the hospital and I need to give myself every opportunity to feel better. As my very eloquent therapist said to me this week, “it’s enough already!”

Yes, it really fucking is.

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