A week ago today I went for my early morning ketamine treatment at the hospital and never left. The plan was set in motion last Wednesday. I needed to be hospitalized and I needed to be safe. I was not thrilled with the idea but was the one who made the call to push things forward.
I met with the doctor who always follows me when I am inpatient and we came to an agreement: I would have 3 ECT treatments before beginning my new medication which I could not begin until today. I had the ECT treatments which brought back a level of anxiety in me I would not wish on anyone. They seemed to help my mood though so I am holding on to that positive. The first ECT was difficult though as ketamine was used as the actual anesthetic which I had never had before. I had difficulty walking after the treatment and even required 2 counselors to help me in the bathroom which was one of the most humiliating moments of my life. I was shaky all day but was told that they would go back to using the anesthetic they used in the past for future treatments.
I went to groups, talked with other patients, counselors and doctors and took care of myself. It was a difficult 7 days. I was away from my daughter, whose only understanding of me being away was that I went somewhere to get new medicine for my depression. I missed her more and more as each day went by. My husband visited as did my parents.
Evenings were the most difficult for me. I felt desperately alone and ached to hold my daughter. I worried about the burden I had become to those I love. I perseverated about these things over and over again.
I knew I needed to be in the hospital and did not waste time going over that. I needed to be in a safe place with little responsibility.
I am home now and very happy to be here. I feel exhausted and a bit overwhelmed. I still need to take things slowly and moment by moment. No extra pressure needed here!
I began my new medication this morning which comes in patch form (MAOI). I pray for positive results. I only agreed to a few ECT treatments to lift me up enough out of my misery in order to hold me until this new medication kicks in. I am terrified of doing more because of my memory issues and because of the great anxiety that is conjured up prior to each treatment. Again, I am focusing on moments at a time right now while I transition back to home life.
I will say it again: depression is a mean and horrible illness and I will continue to fight it with everything I have. I am lucky to have my treatment team in place and my family and friends are right by my side. It will take me some time to thoroughly process the past 7 days and I know I need to give myself that time and opportunity. Honestly, it’s a lot. A lot transpired during the past 7 days and while some was inspiring, some was downright terrifying and brought me to a place of pure despair and loneliness.
If you see me, if you want to contact me, just be positive and be supportive. I honestly cannot handle anything more or less right now. Just be real.
Yesterday I had several hours where I was more alert, involved and could formulate and explain my thoughts. My therapist told me I seemed a bit more together. By the early evening though I began to feel irritable and sad. I knew those hours when I felt clearer were a good sign and my doctors confirmed that this morning before they began my infusion.
I was nervous before they started and once it began that heaviness came over me and I felt as if I were watching everything from outside of myself. I began to cry as I looked at the clock and saw it was the time when I would wait with my daughter for the school bus. I did not see her this morning as I had to be at the hospital very early. I cried more when I thought of her and missed her so much. I focused on her face and what it feels like when I kiss her cheeks, her soft, perfect skin. I focused on her smile. I cried harder. The nurse asked if I was okay and I told her I was but I was aware that I felt scared and not okay. The doctor reassured me.
I then thought of how I am such a burden on my husband, daughter, family and friends. I felt trapped in the bed in the room as if this is my life now and my existence consists of being outside of myself. I cried more.
I looked around and all I wanted was comfort and while the doctors and nurses provided it to me, it wasn’t enough. I wanted and needed more. I could not feel it. I started to imagine my therapist coming toward me and reassuring me. It felt slightly real although I was not hallucinating. I think I was trying to feel a connection to someone or something. I then cried more, feeling so unsatisfied.
The infusion ended and I was glad as I regained myself. It really is such an odd experience and while it is not terrible, it is certainly not enjoyable. Some do enjoy it, some sob throughout, it depends on the person. I do think it is beginning to help me though and that is all that really matters. I have a life, a beautiful life that I want to live in from inside of myself, not outside looking in.
Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality
Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality
Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality
Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality