Categories
Uncategorized

Ketamine Infusion #1

We drove in almost silence. His hand in mine while he drove. I felt numb and nothingness. We arrived and I felt such sadness. Walking into the hospital, where I have been inpatient and received ECT, I felt traumatized and scared. We took the elevator to the basement to check in and as we walked out of the elevator, the smell overcame me. It sparked my memories of walking down the same hall for ECT. I checked in and then underwent cognitive testing for 30 minutes. I had to remember a bunch of words, over and over again and then remember cards simulating different games. I did not do terribly but I did not do too well.

After they walked me to the room where I would receive the infusion, which happens to be the same room where ECT is done. I had to say goodbye to Ken and his hug and kiss was what I needed. The doctor walked me in but the bed was actually not ready. He led me to the waiting area and I began to sob. Ken had already gone out to get some breakfast and I sat alone. Luckily it was only a few minutes and the doctor retrieved me and I walked in to the room where I received ECT treatments, the room that had the same smell. The two nurses who greeted me were known to me as they also work with ECT patients. That helped. As they hooked me up to monitor my heart rate and blood pressure, I continued to sob. I was so sad and so scared. It felt as if this were my very last hope at feeling well. Doctors came in and out and when the medical director came by, who has always followed me when I have been inpatient, I felt a bit of relief. I told him I was scared. He said the only side effect would be that I would feel better. I laughed. It was typical of something he would say. I was so glad and thankful he came to talk to me.

They started the IV infusion and I clenched the dirty tissues in my hands. After a few minutes, everything felt slow and unreal. The nurses and I talked and it felt as if I could not stop talking. I hadn’t been that talkative in months! The doctor came by and said I seemed to be very talkative and he said some people experience that during the infusion. People (nurses, doctors, medical student) came by and talked to me, treated me as a human, supported and comforted me. I could not move my head too much as it felt as if my head was stuck. It was not upsetting just strange. There were some quiet times and I was aware of my surroundings but also felt like an observer of my own experience. Time felt slow but before I knew it, the IV finished and I was done. Within minutes I started to regain myself. I was able to turn my head normally. My blood pressure went down. Then I was released. I will return on Tuesday. I may feel a positive reaction after this one treatment or it may take more. I am trying not to put too much pressure on myself.

As Ken and I walked out of the hospital, the medical director was also walking out. He was glad my treatment went well and it seemed fitting to see him as we left. He is not just a very intelligent psychiatrist, he is such a genuine human being.

It’s only been a few hours since my treatment ended. I have eaten and taken a walk on this beautiful day. I am feeling a bit sad right now but I am here and I will continue to do everything in my power to get better.

Categories
Uncategorized

A Mother’s Day Message to My Daughter

It was dry heaving as the morphine took hold. It was seeing this wet, screaming, angry face. It was sobbing while trying to have you latch on. It was listening to your screaming as I tried to soothe you. It was staying with you in the hospital at 5 months old and worrying that I had damaged you in some way. It was being with you in a treatment room at midnight while the doctor inserted a feeding tube through your nose. It was struggling to teach you to drink formula at the same time as teaching you to drink from a bottle. It was hearing you throw up through the baby monitor and then thinking through how to manage the clean up of you and your crib. It was being with you in the hospital at 8 months old and worrying about your weight. It was worrying about you reaching your developmental milestones. It was worrying about strengthening your legs to be able to walk and it was worrying about your feeding therapy. It was laying with you when you had a 102 degree fever. It was holding you tight while you kicked and screamed when you got your flu shot. It was holding you and reassuring you when you got your ears pierced.  It was talking with you while you cried about an incident at school.

These are the times that truly made me and make me a mother. The love and care came at that first second when I took that pregnancy test and saw two lines. The full heart, warmth, joy and excitement are the easy parts of being your mother. It is the hard times, the times that test my very being, will and strength that really make me your mother. You make me feel humbled, proud and speechless. You are my child and I am your mother.

Categories
Uncategorized

Deeper Facts of My Depression

Most people have some level of understanding of depressive symptoms: sadness, hopelessness, sleep issues, appetite issues, etc. There is so much more though that people may not realize.

Firstly, the person with depression may not be thinking clearly, for example, a friend told me how hopeful she is that I will feel better soon and my interpretation of that was that she did not actually care about me. One plus one does not always equal two in the mind of someone who is depressed. My cognition is greatly impaired and while I can be aware at times of this impairment, the thoughts and feelings feel very real to me. It leaves me in a constant struggle internally which is heartbreaking and energy consuming. This is on top of those “known” symptoms of hopelessness, helplessness, extreme fatigue, low appetite and feelings and thoughts of worthlessness.

Also, my experience is that there is no rhyme or reason in terms of the severity and timing of symptoms. Yesterday morning I felt okay whereas this morning I woke feeling a lot of anxiety. Each day is different right now which is also exhausting. I have no idea what to expect.

I also need what I call “babysitting.” My husband does not want me to be alone for a long period of time. While I can understand this from his perspective, from mine it simply means I am needy and weak and have to impose on others when my husband is not around. I feel like a child and embarrassed. I do not like to put people out and I do not like changing people’s schedules in order to benefit myself. I realize this may not sound like someone who is grateful to have such wonderful people supporting her but this is how my cognition is currently running.

I also feel as if every slight and every unfortunate life incident is my fault, whether it be dropping and breaking a glass or tripping and falling. My inner monologue: Of course, these are all my fault and if I weren’t so stupid these things would not have happened.

What my friends may not realize is that the quick text checking in or the quick call is so helpful. Even if I am not talkative in that moment, I know they are there and will be there to help in any way they can. This may not be well conveyed by me but I mean it. There are not any grand gestures they need to do. Just knowing they are there is extremely supportive and helpful for me.

This is my life right now, every hour, sometimes I feel it every second. It is relentless and to say it is exhausting is not giving it the power it has. My negative thoughts can be terrifying at times and only adds another layer to this experience that I am fighting with all that I can.

This is hard. This is scary. This is real. This is more of what my depression does to me and my life.

NIMH News Feed

Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality, Be Perfectly Imperfect

The Mighty

Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality, Be Perfectly Imperfect

OC87 Recovery Diaries

Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality, Be Perfectly Imperfect

Bring Change to Mind

Read What Life is Like for Someone with Mental Illness. Fight the Stigma, Own Your Reality, Be Perfectly Imperfect